about the trust nicholas's story how to help latest news contact us



aims of the trust


Paediatric Palliative Care
There are a wide variety of complex childhood conditions which limit or threaten life often resulting in death before adulthood. Paediatric Palliative Care is the holistic care of children (under the age of 18) and their families as terminal illness progresses.

‘Palliative care for children and young people with life-limiting conditions is an active and total approach to care, embracing physical, emotional, social and spiritual elements. It focuses on enhancement of quality of life for the child and support for the family and includes the management of distressing symptoms, provision of respite, and care through death and bereavement.’

1. Association for Children with Life Threatening or Terminal Conditions and their Families and the Royal College of Paediatrics and Child Health. ‘ A Guide to the Development of Children’s Palliative Care Services’ London 1997.
make a donation